Microcephaly: ‘It’s not the end of the world’

Laney (age 13)

BBC Medical Science — Microcephaly has come to prominence since the news reports of the Zika virus being linked to birth defects. The condition causes the head to be small in size and the brain to under-develop. But it is not known why babies are born with microcephaly. Gabrielle Frohock from Austin, Texas, US is a mum of three daughters – her last born – nicknamed Laney – has microcephaly. This is her story.

Diagnosis

“After she was born doctors saw her head was too small. They did a cat scan the same day and diagnosed her with microcephaly. Part of the corpus callosum, or the nerve fibres, didn’t form at the back of the head that connects the two hemispheres of the brain. Doctors didn’t expect her to survive beyond a few months old. I had never heard of the condition before, and it was complete and utter devastation when we got the news. We also found out later she has a chromosome disorder that may be a cause of the microcephaly. I was determined I would love her and hold her – I did not put her down for six months, as I didn’t know how long she would survive. …

“When you have a child you love it unconditionally – when you have a special child, for me it’s a love without expectation. If she never says she loves me or never talks, it doesn’t matter. She’s a gift to me. It’s been heartbreaking but I never knew that kind of love existed. It only takes little things to make her happy. She can crawl now – and she can push a button on her favourite toy. We celebrate her birthday like you can’t imagine every year! She has brought so much joy in our lives. She is so wonderful, sweet and loving.” (02/03/2016)

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